All Over the Map.

First of all, I’ve got to say that there is so much more important stuff going on in the world and even in our lives that I feel ridiculous grumbling about my upcoming surgery… but I am about to do it anyway.

When I first found out I needed a hysterectomy, I was all “let’s do this thing.”

The closer I get to the actual surgery, though, the more nervous I get. I wish I had been able to have it done in January like I thought, and hadn’t had three months to obsess about it. Anyway, I am getting very anxious about a couple things.

1. We were done having kids. Like 99.2 percent sure we were done. Our kids are 10 and 6, our family is in the sweet spot of child rearing, we were good to go. Except now that it’s completely certain that we’re not having any more kids, Andy and I are both getting a little sad about it. Not that we would probably have another even if I decided to keep my uterus intact, but it feels weird that we are completely closing that door. I guess it’s a want-what-you-can’t-have thing. Or at least a want-because-you-can’t-have thing. I don’t know, but it’s weird.

2. I am getting super nervous about surgical menopause. I don’t really understand what’s going to happen when I wake up and my body has no estrogen. I don’t know if it’s going to hit me like a ton of bricks, or if my body will hang on to whatever is in there for a while and it’ll be more gradual. I don’t even know what “it” is. This is something that I would normally obsess about and research the hell out of, but to be honest I haven’t had time to delve into an internet rabbit hole. I’ve read some stuff here and there, but not enough. I haven’t made a single spreadsheet. And I really don’t anticipate having the time to do any of that between now and the end of March. So I guess I’ll just show up at the hospital and do what they tell me to do. Is that what normal, non-obsessive compulsive people do? I don’t really know.

Conversely, though, yesterday I had such bad cramps I wanted someone to yank my uterus out stat. That, my friends, is something I will not miss.

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UOO – Unidentified Ovarian Object

I’ve spent a fair amount of time over the years blogging about ovaries.

It began way back in aught nine when I skyped with Kelly Ripa about her support of the Ovarian Cancer Research Fund, and since then I’ve harped on discussed the signs and symptoms, the time I had my genes tested, and Angelina Jolie‘s mind-boggling choice to keep her ovaries in tact.

So you’d think I’d be paying attention to my own. But I wasn’t.

I was due for an annual visit to my OB GYN in July, but making an appointment kept slipping my mind. I conveniently ignored the nagging discomfort in my lower right abdomen, and I chalked up my horrific periods to my advanced age. Eventually I got around to going to the doctor, though, and two weeks ago I went in for my regular exam, as well as for the CA-125 blood test and ovary ultrasound they do each year because of my mom’s ovarian cancer. (As a reminder, there is no effective screening test for ovarian cancer, but these are tests that can detect it when patients are at high risk or have early symptoms.) Last Monday night, I reminded Andy I had a doctor appointment the following morning, and I said to him, “This is the appointment when I go in and she says ‘looks good!’ and I walk right back out. Total waste of time.” He said, “Let’s hope that’s the case,” and then we went to bed.

I was unprepared, though, the following morning when my doctor told me that the ultrasound had shown that there was a cyst of some sort in my ovary, and that my CA-125 level was elevated.

She did her best to assure me that it looked like a complex cyst with ridges and bumps, rather than the smooth variety that would indicate cancer, and said the blood test could mean any number of things. She thought the cyst probably resulted from endometriosis (btw, google chrome is sexist and wants me to change that word to “optometrists”), but given my family history, she wanted to go in and see for sure what was going on. She initially talked about doing so after the first of the year, but fortunately she had a surgery cancellation (which I still don’t get – who cancels surgery? Did something suddenly come up? I’m confused.) the following day.

So, instead of hitting Starbucks and heading back to the office, I found myself listening to instructions for surgery prep and trying not to panic. And, as I do in times of medical emergency, texting Andy, Jenny, and Gina.

But the first thing I did, before I even left the parking lot, was call my sister. Because she gets it.

Obviously, getting the news that there’s something hanging around in my body that shouldn’t be there would be concerning no matter what, but the location of this particular unidentified object resulted in the experience being incredibly emotional for me.

I’m the same age my mom was when she was sick. I have young kids. All the things I have imagined over the years… all the ways in which I have put myself in her shoes in my mind, attempting to understand her story from her perspective – but from a safe and hypothetical distance – suddenly seemed quite real.

I was so worried history would repeat itself.

I am so, so glad I didn’t have to wait three weeks to find out.

The next morning, Andy and I went to the hospital and got the show on the road. I wasn’t nervous about the procedure itself, but the results. When they took me back to get prepped, I couldn’t stop crying. As it turns out, thanks to the miracles of modern medicine, there’s a cure for that. The nurse gave me something so I could “relax,” which was almost as lovely as laughing gas at the dentist. Not only was I relaxed, I was also hilarious. I don’t remember what I said, but I do remember telling Andy I regretted the decision to decline Jenny’s offer to live-tweet the event.

So, after that and an amazing pep talk from my doctor, it was go time.

The only thing I remember after that was being very confused when they wheeled me into the operating room, because it looked just like the room where Jenny had had Jonah exactly four years before. Same room, same doctor, same everything – except it was a lot less stressful for me when it was Jenny’s abdomen about to be cut open. Funny how that works.

Anyway, moments later (in my mind), I woke up from the best sleep I’d ever had. I asked the nurse if I still had an ovary, and she said yes, which I took to be good news. Looking back on it, I’m not sure the continued presence of my ovary indicated much, but at the time I interpreted it as “nothing too bad is going on in there.” I think I was afraid to actually ask anything more specific.

Then, out of the ether, Andy and my dad appeared, and Andy gave me the good news that they did not find cancer. What they found, as my doc had suspected, was endometriosis. A bunch of it, as a matter of fact. So much that my ovaries, instead of floating freely as God intended, are stuck to my pelvic bone and my uterus. Or something. But wherever they are, they are pretty jacked up and need to come out.

So, it looks like I am going to have a hysterectomy here in a few weeks. I don’t have many details yet, and I’ve been consciously avoiding going down too many Google MD rabbit holes, but I do know one thing.

I am going to blog my way through menopause. You’re welcome.

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September is over (ovar-y?)

So as we’ve mentioned a couple times, September is ovarian cancer month. And while teal for ovarian awareness isn’t as ubiquitous as pink that’s on everything, it seems to me that ovarian cancer is popping up all over the place. In the form of diagnoses.

It’s really not as uncommon as what we might think.

Take a look:

photo (53)

You know what sticks out to me? The part that says 93 percent of women diagnosed in the early stages will survive five years. I’ve just come from my annual check up, where I had a blood test to determine my levels of CA-125, an indicator of ovarian cancer, and an ultrasound of my ovaries. I have each of these each year because of my family history, but for almost all women, there is no effective, routine screening for ovarian cancer. It doesn’t show up on a pap test, and it is rather hard to do a self-exam on your ovaries.

So, until they come up with an easy test we can all get, we have to be vigilant and pay attention to our own bodies.

According to the Ovarian Cancer Research Fund, symptoms of ovarian cancer can be vague and not always gynecologic, such as:
• A swollen or bloated abdomen or increased girth (some women notice that their pants are getting tight
around the waist)
• Persistent pressure or pain in the abdomen or pelvis
• Difficulty eating or feeling full quickly
• Urinary concerns, such as urgency or frequency
• Change in bowel habits with constipation and/or diarrhea

Here’s an ovarian cancer fact sheet to read for more information.

And since I have your well-being in mind, let me share one more piece of advice. If you’re looking for a pretty infographic like the one I posted above, search Pinterest. You’ll find all sorts of lovely teal stuff! However, unless you actually want to SEE ovaries? Do NOT do a google image search for ovarian cancer. Don’t say I didn’t warn you.

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