I have problems.

JRap neurotic face

The title of this post is probably the most overly-simplistic statement ever made about little ol’ me.

I don’t really have problems, and if I do, they are first world problems which are not really problems.

But functionally, I have problems. I am functionally disabled. This is why I can’t ever seem to quite clear my kitchen door frame even though I’m pretty sure it’s a) big enough for me to fit through and b) not moving from the same space it’s always occupied.  Or why I often hit my head on the top of our van door frame when I’m buckling Jonah into his seat even though…right, it’s dimensions are never going to change. I lack depth perception, yo.

ANYWAY…my current functional disability is mental. As in the kind that’s really all in my head.

It’s kind of hard to explain, but I’ll try. Here’s a great example: recently Jonah’s private speech language pathologist, the famous Miss Kristen (also Sophie’s beloved SLP), finally was able to get him to cooperate for some actual testing so we can actually! know! for sure! what he needs to learn. That’s pretty exciting stuff, because then we can start working on these things and knocking them out one by one, just like we did with Soph, and get him where he needs to be faster. So I was pretty happy about all this, as I am one who likes direction and concrete stuff to work on with him. (Because I don’t actually know what I’m doing.)

Kristen gave me the results of both his expressive (what he can communicate) and receptive (what language he understands) evaluations and they were almost identical, which is fine and good (Sophie’s was much lower on the receptive back in her day). They both show that he scored just one standard deviation below average. Which isn’t terrible. Kristen was quite pleased. I mean, it’s ONE level below average, not two, not three. Sophie was tested when she was about 5 months older than he is now and scored way worse than he did. And she is a fully-functional, super-smart, socially stellar kiddo now.

So naturally I should be quite encouraged by these results and by the fact that we really know what parts of the evaluation he didn’t do great on so we know what to work on with him. And I am glad, of course, that his result was not worse. Because I didn’t exactly expect  him to like, knock it out of the park or anything.

But the way I actually feel, is not the way I should feel. What I feel is just tired of dealing with it. I feel like I want this to be over. I feel like I don’t want to do it anymore. I feel like I want to fast-forward to two years from now when Jonah will be “Mr. Typical” (ohpleaseohplease) like his sister is now “Miss Typical”. I feel like a jerk for feeling that way because there are some kids who will never be “typical”, and are perfectly awesome just the way they are.

I’m just worn out by all the extra effort it is taking/has taken to help my kids learn language when everywhere I look there seem to be kids with parents who DON’T shower them with love and attention who are developing perfectly normally. (But on the inside I know their sweet hearts and self-esteems are probably not developing perfectly normally.)

What I want to feel is relieved. Relieved that we have goals, have a plan, have a road map to getting Jonah caught up on his language. I want to just sit back and bask in how awesome he is and how far he has come.

But what I want to do is take a short cut.  I want this part to be over. I want to not have this worry in the back of my mind all the time always.

I’ll get over it, I will. But that’s where I’m at right now. Just being honest.

 

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Eosino-what-o?

The mystery of what’s going on with Kate continues.

We met with a specialist at Cincinnati Children’s this morning, and while we aren’t 100% sure what she has, it looks like she has eosinophilic GI disease. Basically, that means that her body is producing too many of a certain type of white blood cell, which is then causing inflammation in her digestive tract.

But, it might not be that. It might be a parasitic infection, or the beginning of something else. We’re not sure yet.

Kate was hoping to walk away from today’s appointment with a clear diagnosis and directions for what to do or not do, and to be done with it. That’s not what happened, though, and she’s a little discouraged.

I am trying to stay away from the Google.

I feel good that we’re on the right track, and I feel incredibly fortunate that we are close to Cincinnati Children’s Hospital, which is THE best place to be treated for these things. So there are definitely positives… I just wish none of this was happening at all.

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Summer School

Jonah tee ball

Well friends, by the time you read this I may be somewhere vomiting (or worse) in fear: today is Jonah’s first day of summer school. I know what you’re thinking: “Dang Jenny! You hate spending time with your kids in the summer so much you signed your baby up for summer school? That’s HARSH!”

I can promise you that’s not exactly what’s happening here. Having Jonah at school fully-dressed in the summer at the crack of 8 a.m. (when his regular school starts at 9:10) and having to drag the big kids along with me to drop him off is not exactly for my convenience. (His teacher is going to see two very different Jenny’s every day, “Drop-off Jenny” who will look like she just rolled out of bed because she DID, and “Pick-up Jenny” who will be perfectly made-up and coiffed, naturally.) But when his regular teacher told me about a free 5-week summer science lab our school district offers for preschoolers, I knew I had to apply for him to get in. Because A) He would LOVE IT and B) the absolute best thing for his language development is for him to be with his peers, and 3 months without that was going to be a LOOONG time and a void that I simply cannot fill no matter how hard I work with him.

SO – for the next 5 weeks, Jonah will be in class from 8 a.m. -12:15 p.m. Monday-Thursday. This is nerve-wracking for me because it’s 90 minutes longer a day than he is used to being in school. It’s also at a different building, but it’s the one that is closest to my house, like, 3 minutes tops, which is convenient but still will be an adjustment (he will still go back to his regular class in the fall.) He will have a new teacher and 2 new teacher aides, and there will be more kids in the class than he’s used to. Also, his regular class is made up of half “typical” kids and half with IEPs, and this will just be a mish-mash of whoever signed up. The other thing I’m a bit worried about is his food allergies. He will eat breakfast and lunch at school but I’ll most likely just have to bring his food I think (he eats breakfast at his regular school and I always just bring him a banana) but I am going to have to find that out for sure tomorrow.

ANYWAY. I am excited for him because I know he’s going to love it (if he gives it a chance. He LOVES going to his regular school), learn a lot, and have some really fun hands-on science-y experiences and hopefully pick up a lot more social language from his peers.

But today, the first day, I will spend 4 hours and 15 minutes worrying my head off while he’s there.

On the positive, side, though, the big kids have VBS this week so I will also get to worry for about 3 of those hours BY MYSELF. WOOOOOOOOOOOOOOOOOOO!!!!!

If you read this in the morning, say a little prayer for me and especially for Jonah. I am praying he loves his 5 weeks of summer science lab and learns a ton!

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